Disorders of Sex Development (DSD) is a superordinate term encompassing congenital conditions in which development of chromosomal, gonadal, or anatomic sex is atypical (estimated at 0.1% - 0.5% of live births). This proposal delivers a decision support tool (DST) to prepare parents to become fully involved in management decisions and could be an exemplar for other DSTs, especially related to rare diseases.
Fola Odetola, M.D., M.P.H. is an Assistant Professor in the Division of Critical Care Medicine. His research interests focus on the optimization of health care delivery to critically ill and injured children through process evaluation, including health technology assessment within the pediatric critical care unit, and outcomes assessment.
Research from the National Poll on Children's Health
As teens get older, they shift from relying on their parents to being in charge of their own health care. The C.S. Mott Children’s Hospital National Poll on Children’s Health asked a national sample of parents of adolescents and young adults aged 13-30 years about their perceptions of their adolescents’/young adults’ abilities to manage their health care needs.