Deriving a Health State Classification System to Measure Health Utilities for Pediatric Populations Based on the PedsQL

Project start and end dates: 1/01/2020 - Fall 2023

Background: 
Currently, there is no health utility scoring system that can be applied across multiple pediatric age groups. Available systems have either been developed for adult populations and applied to children without adjustment or apply only to limited age groups. The PedsQL is a validated, non-preference-based health-related quality of life instrument for children and adolescents aged 2 to 18 years.

Objectives:
To develop and validate a preference-based index for the PedsQL: the PedsUtil scoring system. 

Research Topics & Methods:

  • Health utility elicitation
  • Rasch analysis
  • Econometric analysis to develop a valuation set

Implications:
This study will fill a crucial gap by providing a scoring system for the PedsQL to value children’s health from ages 2 to 17 years.  

Funding statement:
The project is funded by the PhRMA Foundation, 2020 Research Award in Value Assessment

Collaborators: 

Lisa Prosser, PhD
Marilyn Fisher Blanch Research Professor of Pediatrics, University of Michigan

Eve Wittenberg, PhD
Senior Research Scientist, Harvard University

Kim Dalziel 
Associate Professor, University of Melbourne

For more information, please contact:
Lisa Prosser, PhD, MS
Director, Susan B. Meister Child Health Evaluation and Research Center

Email: lisapros@umich.edu

Angela Rose
Project Manager

Email: angmrose@umich.edu